List of Data Sources

Major Projects Open Trials
#1

This is a list of data sources that contain information on drugs names (both scientific and brand names), clinical trials, and health conditions. If you know of another one, please consider adding it below.

Clinical Trials

Drugs

Health Conditions

No data sources found.

1 Like
#2

AHRQ Systematic Review Data Repository

srdr.ahrq.gov

Theme Clinical Trials
Is it published under an open license? unknown
Price (USD) unknown

Description
The Agency for Healthcare Research and Quality is a part of the U.S. Department of Health and Human Services. It publishes the Systematic Review Data Repository (SRDR) which is a tool for the “extraction and management of data for systematic review or meta-analysis”.

#3

ClinicalTrials.gov

clinicaltrials.gov

Theme Clinical Trials
Is it published under an open license? unknown
Price (USD) unknown

Description
ClinicalTrials.gov is a service of the U.S. National Institutes of Health and currently lists 197,314 studies with locations in all 50 U.S. states and in 190 countries. It is maintained by the National Library of Medicine (NLM) at the National Institutes of Health (NIH). Information on ClinicalTrials.gov is provided and updated by the sponsor or principal investigator of the clinical study. Studies are generally submitted to the Web site (that is, registered) when they begin, and the information on the site is updated throughout the study. In some cases, results of the study are submitted after the study ends.

#4

Cochrane Central Register of Controlled Trials (CENTRAL)

community.cochrane.org

Theme Clinical Trials
Is it published under an open license? unknown
Price (USD) unknown

Description
The Cochrane Central Register of Controlled Trials (CENTRAL) is a database that provides reports of randomized controlled trials. Records contain the list of authors, the title of the article, the source, volume, issue, page numbers, and, in many cases, a summary of the article (abstract). CENTRAL is freely available to Cochrane members via the Cochrane Register of Studies Online (CRSO).

#5

Cochrane Schizophrenia Group

szg.cochrane.org

Theme Clinical Trials
Is it published under an open license? unknown
Price (USD) unknown

Description
The Cochrane Schizophrenia Group’s Register contains 13542 coded studies (as of February 2012). The register is maintained on Meerkat 1.6. This version of Meerkat stores references as studies. When an individual reference is selected through a search, all references which have been identified as the same study are also selected.

#6

European Medicines Agency Trial Database

www.clinicaltrialsregister.eu

Theme Clinical Trials
Is it published under an open license? unknown
Price (USD) unknown

Description
The EU Clinical Trials Register contains information on interventional clinical trials on medicines conducted in the European Union (EU), or the European Economic Area (EEA) which started after 1 May 2004. The Register also provides information about older paediatric trials covered by an EU marketing authorisation. This is the database used by national medicines regulators for data related to clinical trial protocols. The data on the results of these trials are entered into the database by the sponsors themselves and are published in this Register once the sponsors have validated the data. The EU clinical trials register has been a primary registry in the World Health Organization (WHO’s) Registry Network since September 2011 and is a WHO Registry Network data provider. It is also available on the WHO International Clinical Trials Registry Platform External link.

#7

National Institute for Health Research - Health Technology Assessment

www.nets.nihr.ac.uk

Theme Clinical Trials
Is it published under an open license? unknown
Price (USD) unknown

Description
The NIHR, Evaluation, Trials and Studies (NETS) programmes, fund valuable independent research for health and social care decision makers. They are managed by the NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC), based at the University of Southampton. While some of the research programmes share common themes and complement each other, they each have different specialist funding remits.

#8

UK Clinical Trials Gateway

www.ukctg.nihr.ac.uk

Theme Clinical Trials
Is it published under an open license? unknown
Price (USD) unknown

Description
The UK Clinical Trials Gateway provides information about clinical trials running in the UK. It is designed to enable patients and their clinicians to locate and contact trials of interest.

#9

DrugBank

www.drugbank.ca

Theme Drugs
Is it published under an open license? unknown
Price (USD) unknown

Description
The DrugBank database is a bioinformatics and cheminformatics resource that combines detailed drug (i.e. chemical, pharmacological and pharmaceutical) data with comprehensive drug target (i.e. sequence, structure, and pathway) information. The database contains 7759 drug entries including 1602 FDA-approved small molecule drugs, 161 FDA-approved biotech (protein/peptide) drugs, 89 nutraceuticals and over 6000 experimental drugs. Additionally, 4300 non-redundant protein (i.e. drug target/enzyme/transporter/carrier) sequences are linked to these drug entries. Each DrugCard entry contains more than 200 data fields with half of the information being devoted to drug/chemical data and the other half devoted to drug target or protein data.

#10

##FDA (Food and Drug Administration)
open.fda.gov

Theme Drugs
Is it published under an open license? yes
Price (USD) 0

Description
The goal of the open.fda.gov is to create easy access to public FDA data by indexing high-value public-access data, formatting and documenting that data in developer and consumer-friendly standards, and making that data available via a public-access portal that enables developers to quickly and easily use it in applications.

#11

NIH Drug Portal

druginfo.nlm.nih.gov

Theme Drugs
Is it published under an open license? unknown
Price (USD) unknown

Description
The NLM Drug Information Portal gives users a gateway to selected drug information from the U.S. National Library of Medicine and other key U.S. Government agencies. More than 49,000 drugs can be searched using this facility. Many drugs in other countries are covered, but not as thoroughly as U.S. drugs.

#12

WHO DDE

www.umc-products.com

Theme Drugs
Is it published under an open license? false
Price (USD) 15000 per year

Description
The WHO DDE (Drug Dictionary Enhanced) contains unique product codes for identifying drug names and evaluating medicinal product information, including active ingredients and therapeutic uses.

#13

There were several other sources of drug data mentioned in the thread that Rufus started:


including Freebase, RxNorm, a French database, probably others.

#14

@danfowler actually curated this list (I believe). Dan, are there more sources to add, or were some intentionally excluded?

#15

Hey @sam these suggestions by @tfmorris were added a few days ago so I didn’t have a chance to add to the curated list. They are definitely worth adding to this topic, though :).

#16

The French database was actually suggested by @okfnvince.

#17

##Freebase

https://www.freebase.com/medicine

Theme Drugs
Is it published under an open license? yes
Price (USD) 0

Description
Concerned with both the art and the science of maintaining and restoring human health, to paraphrase Wikipedia.There’s much to explore here, whether you are a healthcare professional or an interested data expert. Feed your hypocondriac tendencies by browsing the diseases, learn about the human body (choose from such structures as artery, muscle, nerve, bone, etc.).

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#18

##RxNorm

https://www.nlm.nih.gov/research/umls/rxnorm/docs/rxnormfiles.html

Theme Drugs
Is it published under an open license? unknown
Price (USD) unknown

Description
US-specific terminology in medicine that contains all medications available on US market. It can also be used in personal health records applications. It is part of UMLS terminology and is maintained by National Library of Medicine.

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#19

##Base de données publique des médicaments

Theme Drugs
Is it published under an open license? unknown
Price (USD) unknown

Description
The public database of medicines enables the general public and health professionals to access data and reference documents on marketed drugs or have been marketed during the last two years in France.